Friday, March 01, 2013

Hang on for the ride

'Cause we're just getting started.

OK, I have to say, I just cleaned our bathroom floor and I had no idea how bad it was to take a week off. Don't know if most the hair on the floor is his or if it's because we have animals, but it was a mess!

Anyway, Gil is doing pretty good. He's had a few sniffles here lately, but we thing it's just the pollen and the cold snap we are having. He's been cautious by not going out too much when it's cold (he does play with snoopy in the front yard) and not going to visit Mom in the nursing home. I'm not sure how she is doing, but I know Dad is starting to feel pretty lonely at home. Dad visits her every day thanks to my sis-n-law's.

Back to Gil. This Wednesday as he was coming to pick up Dani at school, he got a call from Moffitt about starting the vital organs testing. Later on he got another call that they were working on a schedule and a place for us to stay (Hope lodge??). Then...it wasn't until friday that he saw the schedule on his "My Moffitt" page.

So, here's the first part:

March 12 starting at 8am - 2:30 pm
PET scan (no food), financial, pre-visit screening, meg lab?, social worker (maybe that's the psychologist?)

March 13 starting at 8:30 am - 11 am
Muga scan, NVO?, EKG, Pulmonary function test (no caffine)

March 14 starting 10:30 am - 2:40 pm
prep instructions, CT Scan

I'm putting in for my leave from work starting March 18th so we can get the house sitters settled in, the next set of prep-instructions and orientation classes. I'll cover that set of appointment later. We're a little overwhelmed as it is with the months worth of appointments. It does seem a couple are missing - surgery for the other catheter and the booster shots prior to apheresis (harvesting the cells).

More fun to come...

2 comments:

Anonymous said...

To quote a fishy,
"just keep swimming, just keep swimming, swimming, swimming, swimming"


~Rachael

Anonymous said...

Hang in there guys. Lots of prayers heading your way.

Kendra