Well this was a little unexpected. Due to his tonsil still showing signs of disease, they don't want to do the transplant yet. They want him in total remission before moving ahead with the transplant process.
What does this mean?
2 rounds of a new chemo therapy (Brentuximab vedotin/Adcetris) and moving the BMT to late May.
Lots of change of plans - our leave from work, cancel the house sitter - or at least reschedule, don't have to worry about housing for a while, summer plans change too.
He shouldn't have to go through organ testing again - yay - but do we cancel our appt with the social worker today? Evidently, No
The class & psychologist tomorrow? Yes
Ugh ....
Social worker: ok, so turned in the paperwork for any financial assistance. Once we have new dates, we can out in a request for lodging. Convenience would be to be in place (in Tampa) prior to transplant ...when he's getting the neutrogin shots, then after transplant is mandatory.
Sometimes you just want it done and over, not more waiting. 😓
2 comments:
We are still with you! Keep us up on any changes--we might be of help?
Hugs to all Hair & no-hair !!
Love Mom & Dad H
Let me know if there is anything we can do on our end. I wish it was better news. Love you, keep your chin up Aunt Carol. I know this is harder on the two of you more than anyone else. Please let me know if there is anything I can do.
- Shannon and the Gang
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